Palliative care for hospitalized children: perception of the nursing team
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Abstract
Objective: to understand the perception of the nursing team of an intensive care unit and pediatric hospitalization about palliative care for hospitalized children. Methods: a descriptive, qualitative study was conducted with a large hospital pediatric intensive care and hospitalization unit's nursing team. Fourteen nursing professionals participated in the study, including nurses, technicians, and nursing assistants. Data were collected through semi-structured interviews and treated under content analysis. Results: The interpretative analysis of the interviews allowed the construction of three categories:"The knowledge of the nursing team about palliative care in pediatrics", "The challenges of the nursing team in performing palliative care in pediatrics", and "The benefits of palliative care in pediatric care from the perspective of the nursing team". Conclusions: The lack of knowledge and training of nursing professionals on palliative care are factors that can hamper their implementation and consolidation process in units that care for children with no possibility of cure, in addition to favoring decisions to be under the responsibility of the medical category, compromising the role of the multidisciplinary team and depriving patients of the benefits of palliative care.
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References
Santos RP, Severo VRG, Kegler JJ, Jantsch LB, Cordeiro D, Neves ET. Perfil de crianças com necessidades especiais de saúde e seus cuidadores em um hospital de ensino. Ciênc Cuid Saúde. 2020;19:e467241. https://doi.org/10.4025/ciencuidsaude.v19i0.46724
Barbosa AN, Nascimento IA, Carvalho MJS, Aoyama EA, Lima RN. A importância da assistência humanizada prestada pelo enfermeiro nos cuidados paliativos ao paciente oncológico terminal. ReBIS [Internet]. 2019 [cited 2022 Aug 22];1(4):92-6. Available from: https://bit.ly/3dzAtx0
Gomes ALZ, Othero MB. Cuidados paliativos. Estud Av. 2016;30(88):155-66. https://doi.org/10.1590/s0103-40142016.30880011
World Health Organization (WHO). Knowledge into Action Palliative Care. Cancer Control; 1–42:2007 [cited 2022 Aug 21]. Available from: https://apps.who.int/iris/bitstream/handle/10665/44024/9241547345_eng.pdf;jsessionid=C3E11870D89E18DAED6CE04DC7C0D0FF?sequence=1
World Health Organization. Integrating palliative care and symptom relief into paediatrics: a WHO guide for health-care planners, implementers and managers [Internet]. Geneva: World Health Organization; 2018 [cited 2022 Aug 22]. Available from: https://apps.who.int/iris/handle/10665/274561
World Health Organization. Cancer pain relief and palliative care in children [Internet]. Geneva: World Health Organization; 1998 [cited 2022 Aug 21]. Available from: https://apps.who.int/iris/handle/10665/42001
Santos ALN, Lira SS, Costa RSL. Cuidados paliativos prestados pelo enfermeiro ao paciente oncológico. DêCiência Foco. 2018;2(1):63-77.
Matos JC, Borges MS. A família como integrante da assistência em cuidado paliativo. Rev Enferm UFPE. 2018;12(9):2399-406. Available from: https://bit.ly/3wlFhNf
Rhiry-Cherques RH. Saturação em pesquisa qualitativa: estimativa empírica de dimensionamento. Af-Rev PMKT. 2009;4(8):20-7.
Leite RF. A perspectiva da análise de conteúdo na pesquisa qualitativa: algumas considerações. Rev Pesq Qual [Internet]. 2017 [cited 2022 Aug 21];5(9):539-51. Available from: https://editora.sepq.org.br/rpq/article/view/129
Schirmer CA, Freitas HMB, Donaduzzi DSS, Machado RM, Rosa AB, Fettermann FA. Cuidados paliativos em um pronto socorro pediátrico: percepção da equipe de enfermagem. Vivências. 2020;16(31):235-44. https://doi.org/10.31512/vivencias.v16i31.112
Verri ER, Bitencourt NAS, Oliveira JAS, Santos Júnior R, Marques HS, Porto MA, et al. Profissionais de enfermagem: compreensão sobre cuidados paliativos pediátricos. Rev Enferm UFPE. 2019;13(1):126-36. Available from: https://bit.ly/3QD887G
Silva HA, et al. Intervenção em cuidados paliativos: conhecimento e percepção dos enfermeiros. Rev Enferm UFPE. 2018;12(5):1325-30. Available from: https://bit.ly/3AALY0g
Araújo LG, Melo YST, Carvalho FP, Silva ECA, Melo KCNO, Barboza MTV, Vasconcelos JLA. Cuidados paliativos em pacientes oncológicos: uma abordagem do conhecimento dos enfermeiros. REAS. 2020;12(11):e4663. https://doi.org/10.25248/reas.e4663.2020
Gulini JEHMB, Nascimento ERPD, Moritz RD, Rosa LMD, Silveira NR, Vargas, MAO. Intensive care unit team perception of palliative care: the discourse of the collective subject. Rev Esc Enferm USP. 2017;51:e03221. https://doi.org/10.1590/s1980-220x2016041703221
Martins GB, Hora SS. Desafios à integralidade da assistência em cuidados paliativos na pediatria oncológica do Instituto Nacional de Câncer José Alencar Gomes da Silva. Rev Bras Cancerol. 2017;63(1):29-37. https://doi.org/10.32635/2176-9745.RBC.2017v63n1.154
Andrade CG, Costa SFG, Costa ICP, Santos KFO, Brito FM. Cuidados paliativos e comunicação: estudo com profissionais de saúde do serviço de atenção domiciliar. Rev Fund Care Online. 2017;9(1):215-21. https://doi.org/10.9789/2175-5361.2017.v9i1.215-221
Botossi DC. O desafio do enfermeiro frente aos cuidados paliativos em pediatria. Braz J Develop. 2021;7(6):55949-69. https://doi.org/10.34117/bjdv7n6-145
Silvestri APS, Santos EL, Belini GF, Pellizzaro AO, Moura TS, Gonçalves S, et al. Nursing team facing palliative care in pediatrics: Integrative review. Res Soc Develop. 2021;10(5):e13910514848. https://doi.org/10.33448/rsd-v10i5.14848